Since her esophagus does not connect to her stomach, Eloise can't eat anything. So all she ever gets in her mouth is the stinking replogle tube, and occasionally a sponge. This girl is going to have to hike a long road to eating orally, or learning that its okay to put food in her mouth.
But what she can have is Chapstick.
Today I had the brainwave of giving her every flavor imaginable of Chapstick. I took the three ladies at home and let them all choose a flavor for their new sister. What fun we had :). I bought almost every kind. Cotton candy. Tropical fruit. Wild berry. Chocolate. Jolly rancher. Skittles. I bought enough Lip Smackers to shame an enthusiastic thirteen-year-old. And you know what? We tried watermelon with Eloise tonight. Her eyes focused, she opened her mouth for more, and even cautiously licked it a couple times.
When life gets as complicated, heartbreaking, and as difficult as it is right now for me, I will grab happy moments with both hands, whatever flavor it happens to come in.



What a great idea!! I bet she loved it!
ReplyDeleteLove these photos!
ReplyDeleteAwesome! I loved all the pictures.
ReplyDeleteThat sounds like a great idea! Coincidentally, I was reading some Freudian theory about the oral phase in the development of children. It sounds like you are doing a good job of helping Eloise get some sensory stimulation (and understanding of the world) through applying chap stick. ;)
ReplyDelete